Posted on June 29th, 2018
Due to having post-sepsis syndrome, it is sometimes difficult to remember what order events occurred. (Sepsis and Post-Sepsis Syndrome) Composing this story is also difficult because of the brain injury incurred from sepsis. I was a very unlucky person to have had sepsis twice within a span of three years. To make matters worse, I was given an antibiotic (levofloxacin) to which I was allergic. The allergy symptoms were very close to and mimicked the symptoms of sepsis and still do today. For the last five and a half years, I have tried to continue living a productive life but have found this impossible to do.
The first time I had sepsis I got it through a sinus infection. (Sepsis and Bacterial Infections) Sepsis protocol was not followed. The second time was with pneumonia. (Sepsis and Pneumonia) My worse symptom now is extreme fatigue and labored breathing. I am on oxygen. I have also been diagnosed with cognitive impairment. I have nearly all the effects listed in the syndrome. After the being in hospice care and then sepsis again, I now need to live in a healthcare facility since there many functions I am not able to do anymore. I have to take rest between any chore such as bathing, dressing, making bed, and straightening my room. I do try to do a modest exercise therapy.
I had no temperature with either sepsis event. My advice is: do not procrastinate care for any infection, push doctors for blood tests, know what sepsis protocol is, read possible antibiotic side effects information, and take all of prescribed medication. Also, behaviors that are out of character can also be a warning sign of a medical problem. That was very true in my case. I started exhibiting extreme manic behavior a month before I felt physically ill. I feel very fortunate that I did not lose any limbs because of sepsis. I also have to be grateful for all the medical personnel that did believe me about my side effect from having sepsis and from taking the medication. I am glad that I have found this organization to help validate my experience with this life changing illness. Best wishes to all who are recovering .