Sepsis Survivors

Being discharged from the hospital is a good day for most people, but it can also be stressful. Post-sepsis life can have challenges, especially if you have been left with long-term problems related to your illness. Some sepsis survivors recover completely and resume their lives, while others may struggle to cope, something no one expected.

Here you can find information to help you navigate post-sepsis life.

Starting in 2019, Sepsis Alliance added to the awareness efforts by launching Sepsis Survivor Week, which focuses on the survivors and the challenges they may face. Click here to learn more about Sepsis Survivor Week.

FAQ

Our Frequently Asked Questions (FAQ) section addresses many questions related to sepsis and life after sepsis. Survivors and their family and friends can find answers to questions, such as can I get sepsis again, why am I so tired, and can sepsis be prevented? You may also find our Life After Sepsis Information Guide helpful in explaining some of the issues that could last long after discharge from the hospital.

KNOW THE SEPSIS FACTS

Many researchers are working to learn more about what causes sepsis, how it affects patients, and life after sepsis. Learn more about the facts and statistics in the Life After Sepsis Fact Sheet.

AFTER DISCHARGE FROM THE HOSPITAL

Once you have been discharged from the hospital, it may seem that you’ve been left to fend for yourself. Discharge instructions are sometimes rushed or may be incomplete, or you may not think of the questions you need to ask. To help you with the hospital to home or hospital to rehab transition, Sepsis Alliance has put together a checklist with the most common issues that come up. Click here for the list.

We have also created a discharge kit for those being released from the hospital after COVID-19. Download the guide here.

Since sepsis survivors are at risk for repeat infections, you should also speak with your doctor about any vaccinations that you may need to reduce the likelihood of getting another infection. You can read about these vaccines at the Centers for Disease Control and Prevention (CDC), the World Health Organization (WHO), and the European Center for Disease Prevention (ECDP), which provide schedules for adults and children. You can also learn more at Prevention: Vaccines. Regaining your health after sepsis can also be slow, but good nutrition can help you along the way. Learn more about nutrition after sepsis here.

CONNECT WITH OTHER SEPSIS SURVIVORS

Sepsis Alliance Connect is a virtual support community designed for the millions of people affected by sepsis. Click here to learn more or to sign up.

LEARNING ABOUT POST-SEPSIS SYNDROME (PSS)

Many people who spend time in an intensive care unit (ICU) develop problems like post-traumatic stress disorder (PTSD). Those who were treated for sepsis may develop not only PTSD, but other problems as well. You can learn more about PSS here and PTSD here.

COPING WITH MENTAL HEALTH ISSUES

Your mental health is a vital part of your overall recovery. If you find yourself struggling with anxiety, depression, or any other mental health issue and you don’t know where to turn, visit our Mental Health Resources page for a list of organizations that may help you.

EXPLAINING POST-SEPSIS ISSUES TO OTHERS

If you are experiencing problems after your discharge, either physical, cognitive, or psychological, you may find it difficult to explain. To help explain post-sepsis issues, Sepsis Alliance has written letters that explain sepsis and PSS to:

CONDITIONS THAT CAN CAUSE SEPSIS

Anyone can develop sepsis, but some people are at higher risk, including sepsis survivors. Learn how sepsis is associated with various conditions, such as diabetes or cancer in our Sepsis and… library.

Updated June 13, 2025.

Video Resources

Faces of Sepsis: Survivor Panel

Presented by sepsis survivors for sepsis survivors, this webinar includes a panel discussion about life after sepsis. Three sepsis survivors will tell their stories and will answer attendee questions about their experiences with sepsis, as well as how they found purpose and returned to life after sepsis.

Septic Shock with Multiple Amputations: A Survivor’s Story

Liz Hopkins Ibsen

Survivor

We evacuated to Columbus, GA, for hurricane Katrina in 2005. I spent endless hours watching the news footage and my co-workers on the roof of Tulane & Charity hospitals. One night I went to bed with chills, and my husband saw that my eyes were “rolling to the back of my head” and I was “burning up”. He called the front desk and Red Cross in a panic. They found a local physician who was taking in “refugees”. I couldn’t even sit up in a chair at the doctor’s office, so I laid on the floor. They couldn’t get a ... Read Full Story

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Zsuzsanna Fodor

Survivor, Survivor

In February 2020, my life changed in just three days. It started with what seemed like nothing serious. I felt unwell, weak, and with inexplicable chills. I went to seek medical help more than once, but I was dismissed. First, it was “nothing.” Then maybe the flu when fever and cough appeared. On the third day I was vomiting and I hardly had any urine, but I didn’t know it was a sign of sepsis, in fact we didn’t know sepsis existed and what it was. I knew something was wrong, but I couldn’t explain it. I thought it was ... Read Full Story

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Tina Minnich

Survivor, Survivor, Survivor

In September of 2023 I started having pain in my left knee, it progressed quickly to the point I couldn’t walk. I went to the ER 3 times crying in pain and they really didn’t do anything. To them I was obese and already had arthritis so why look further. The next night I couldn’t take the pain anymore. My sister brought me to the ER and yelled at them to do something. I don’t remember much until I woke up about 2 weeks later on a ventilator. My sister told me I had MRSA in the knee and I ... Read Full Story

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Joseph Baldini

Survivor, Survivor, Survivor, Survivor

On January 22, 2025 I woke up with 102° temp. Took ibuprofen went back to bed. January 23 woke up again at night 102° took ibuprofen didn’t think too much of it. January 24 103° temp and my lower left side of my back was in a lot of pain. January 25, could barely walk 103°, call the ambulance to go to the hospital. Arrived 4a.m. took test had to wait for the lab for blood results. I left, told the doctor if it gets worse I’ll come back. At 1a.m. the 26 of Jan, hospital called told me to ... Read Full Story

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Danielle Thompson

Survivor, Survivor, Survivor, Survivor, Survivor

I went in for a hysterectomy 3 years ago at age of 47. I’m a mom of 3 my kids, 11, 14 and 16. I had ovarian cancer at age 24. Lost an ovary then but even after going through chemo still was able to have 3 kids. I had 3 c sections so I did have a lot of scar tissue at time of hysterectomy. They did mention they knocked my ureter but all was fine. Went home a few days later was worsening got a fever. Husband took me to ER I declined quickly. They took me into ... Read Full Story

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Help Raise Sepsis Awareness

Many sepsis survivors and loved ones feel the need to help spread sepsis awareness so others don’t go through the same thing. There are many ways you can do this:

Faces of Sepsis

Share your story through our Faces of Sepsis feature. There are more than 1,000 stories from survivors and people who have lost a loved one to sepsis. Sharing your story has three initial benefits. Many survivors and loved ones feel that writing the story down and sharing it allows them to process feelings about their illness and the aftermath. It also helps others, the readers, learn that they aren’t alone.

Too many sepsis survivors think that no one understands what they’ve gone through but when they read these stories, they no longer feel so alone. These stories also show the readers that sepsis can affect anyone – their family, friend, coworker.

Host a talk

Sepsis Alliance has made available a kit called Sepsis 911, Community Education Presentation. A second one focusing on sepsis and aging is also available.

By giving talks to social groups, friends and family, school, even coworkers, you can help educate the people around you about sepsis, what it is, how it happens, and how to reduce your risk of developing it. The kit provides you with material you need for a successful talk, such as a leader’s guide (with script), a video, customizable promotional materials, surveys, and more.

Host an awareness event/fundraiser

Local awareness events are being held across the country, spearheaded by individuals like you. Whether you want to hold a Stomp Out Sepsis or Sips for Sepsis event, or anything in between, these events help raise awareness and raise funds for Sepsis Alliance, to help support the organization’s awareness efforts. Or if you’d rather do an online awareness event, that works too. Check out the host an event page for other ideas and a fundraising toolkit.

Give to Sepsis Alliance

Sepsis Alliance is the nation’s leading organization, working in all 50 states, to save lives and reduce suffering by improving sepsis awareness and care. As a non-profit organization, Sepsis Alliance relies on generous gifts from people like you. Many employers match donations to non-profit organizations, so you may want to check if your employer does. Click here to give now.

Buy Sepsis Alliance products

You can find sepsis awareness products in our store. From symptoms cards to lapel pins, these products may introduce the word to someone who has never heard of it, stimulating a conversation about what sepsis is.

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