Sepsis Alliance Connect

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About Sepsis Alliance Connect

Sepsis Alliance Connect is a virtual support community designed for the millions of people affected by sepsis. Each year, an estimated 1.4 million people survive sepsis and over 350,000 adults die from sepsis in the United States alone. Sepsis Alliance Connect is a place for these survivors, caregivers, loved ones, and those left behind after a sepsis death to come together and share resources, insight, and encouragement about their sepsis experience and life after sepsis.

The main goal of Sepsis Alliance Connect is to connect those who have been impacted by this often isolating and frequently misunderstood condition. Members can take part in live and pre-recorded programs exploring topics such as:

  • Coping with life after sepsis
  • Managing mental health
  • Adjusting to life after amputations

Sepsis Alliance Connect was launched by Sepsis Alliance in 2022 with the support of volunteer community leaders passionate about positively impacting the lives of those affected by sepsis.

Upcoming Live Programs

  • Peer Support Conversations
    These conversations, scheduled at various times throughout each month, are facilitated by volunteers who are sepsis survivors, caregivers of sepsis survivors, and people who have lost a loved one to sepsis.
  • Sepsis Awareness: What Did We Learn in 2022? October 10, 2022
    Jill Gress:  Vice President, Radius Global Market Research and Secretary, Sepsis Alliance Board of Directors
    Daniela Linares: Community Engagement, Inclusion, and Access Intern, Sepsis Alliance

    In 2003, a sepsis awareness survey conducted by Sepsis Alliance found 19% of U.S. adults were aware of the term sepsis. This annual awareness survey found 66% of U.S. adults are aware of the term in 2022. However, only 19% of those aware can identify all four of the common symptoms of sepsis that should lead a person to seek emergency care. In addition, this year’s survey showed statistically significant differences in sepsis awareness among four self-identified demographic categories: gender, race/ethnicity, education level, and annual household income.What do these findings tell us about the impact of Sepsis Alliance’s work so far? How might these findings guide us in the future?

Recorded Program Library

Browse a library of recorded programs you can watch any time, which will grow as new programs are added. As soon as you log in, you’ll find a program library which includes:

  • Unmet Expectations: Grief When Sepsis Changes Your Life, Kristan Seaford, Licensed Clinical Mental Health Counsellor and Sepsis Survivor; Darrell Raikes, Sepsis Survivor; Kaitlin Walden, Mother of Pediatric Sepsis Survivor
  • Pain After Sepsis, Marijke Vroomen Durning, RN: Senior Clinical Content Advisor, Sepsis Alliance;Mike St. Onge, Sepsis Survivor;
    Toya Russell, Sepsis Survivor
  • Caregivers’ Mental Health, Dr. Stephen M. Scheinthal: Department of Psychiatry, Rowan University School of Osteopathic Medicine
  • Amputee Panel, Katy Grainger, Kim Gilliam Steele & Mike St. Onge: Sepsis Survivors and Amputees
  • Sepsis and Older Adults, Al Cardillo, LMSW: President & CEO, Home Care Association of New York State
    & Wayne Shepard, RN: Director, Delaware County Office of the Aging
  • Advocacy Basics, Kristin DeVries: Director of Advocacy, Sepsis Alliance
  • Grief 101, Kristan Seaford, LPC
  • Sepsis awareness resources
  • Adaptive fitness and meditation classes
  • and more

FAQs

Do I need to be tech savvy?

Not necessary! Familiarity with a computer is helpful, but not required. Our staff is happy to help walk you through the process to get started, and the community is designed to be user-friendly. We also have regular drop-in “office hours” for tech questions.

What technology do I need?

Any up-to-date desktop/laptop computer or tablet will work. You also need a web camera & microphone (if not already built into your device) to participate in interactive programs.

Who is part of Sepsis Alliance Connect?

Sepsis Alliance Connect is made up of sepsis survivors, their caregivers and loved ones, and those who have lost loved ones due to sepsis. For many in the community, their experience with sepsis happened years ago. For others, it is a more recent experience. All are interested in connecting with others whose lives were impacted by sepsis.

Do I need to be able to hear the programming?

Wherever possible, live captioning is available for those who cannot hear programming well. In some cases, captioning may not be available for various program components such as videos.

Will programs be available in other languages?

Programming is currently available in English, but as Sepsis Alliance Connect grows, we hope to provide programming in other languages as well.

Will there be message boards or different ways to connect with others?

We expect Sepsis Alliance Connect to grow over time. While our current programs include live and recorded video sessions, we hope to expand into different ways of connecting (including written peer-to-peer communication) in the future.

Who can I ask if I have other questions?

Please reach out to Megan Jones with further questions, at mjones@sepsis.org

Join Sepsis Alliance Connect!

Please fill out the registration request. Sepsis Alliance will create your account and send login information by email.

Register Now
Sign in to Sepsis Alliance Connect!

Do you already have a Sepsis Alliance Connect login?
Click the button below to sign in.

Sign in