Sepsis Alliance Connect

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About Sepsis Alliance Connect

Sepsis Alliance Connect is a virtual support community designed for the millions of people affected by sepsis. Each year, an estimated 1.4 million people survive sepsis and over 350,000 adults die from sepsis in the United States alone. Sepsis Alliance Connect is a place for these survivors, caregivers, loved ones, and those left behind after a sepsis death to come together and share resources, insight, and encouragement about their sepsis experience and life after sepsis.

The main goal of Sepsis Alliance Connect is to connect those who have been impacted by this often isolating and frequently misunderstood condition. Members can take part in live and pre-recorded programs exploring topics such as:

  • Coping with life after sepsis
  • Managing mental health
  • Adjusting to life after amputations

Sepsis Alliance Connect was launched by Sepsis Alliance in 2022 with the support of volunteer community leaders passionate about positively impacting the lives of those affected by sepsis.

Upcoming Live Programs

  • Peer Support Conversations
    These conversations, scheduled at various times throughout each month, are facilitated by volunteers who are sepsis survivors, caregivers of sepsis survivors, and people who have lost a loved one to sepsis.
  • Caregivers’ Mental Health, August 10, 2022
    Dr. Stephen M. Scheinthal: Department of Psychiatry, Rowan University School of Osteopathic Medicine
    How can we “put on our own oxygen mask first,” when there is already so much to do? It can be difficult, mentally and physically, to be a caregiver. In this presentation, Dr. Scheinthal will review some tools and strategies to help care for yourself while caring for a sepsis survivor.
  • Sepsis Superhero Challenge, August 23, 2022
    Brenda Balderas: Sepsis Advocate
    Miguel Gonzalez: Sepsis Advocate
    Alex Sadorf: Director of Marketing & Communications, Sepsis Alliance
    Every year during Sepsis Awareness Month in September, Sepsis Alliance hosts the Sepsis Superhero Challenge. This virtual event brings together your community to raise sepsis awareness and raise funds for Sepsis Alliance. Learn more about how to be a Sepsis Superhero in 2022.
  • Pain Management, September 7, 2022
    Marijke Vroomen Durning, RN: Senior Clinical Content Advisor, Sepsis Alliance;
    Mike St. Onge, Sepsis Survivor;
    Toya Russell, Sepsis Survivor
    Pain after sepsis is a common and often frustrating experience. Whether tied to something specific, like an amputation, or with a less clear origin, managing pain is a crucial part of life for many sepsis survivors. Hear from Sepsis Survivors about some of the tools and strategies they have used to manage pain after sepsis.
  • Unmet Expectations: Grief When Sepsis Changes Your Life, September 21, 2022
    Kristan Seaford, Licensed Clinical Mental Health Counsellor and Sepsis Survivor;
    Darrell Raikes, Sepsis Survivor; 
    Kaitlin Walden, Mother of Pediatric Sepsis Survivor
    Grief does not only happen when someone dies. For sepsis survivors and their loved ones, it is common to grieve the expectations that they once had, before sepsis caused their life to take a different course. Hear from survivors and loved ones about their experiences with this grief and how they have managed to move forward.

Recorded Program Library

Browse a library of recorded programs you can watch any time, which will grow as new programs are added. As soon as you log in, you’ll find a program library which includes:

  • Amputee Panel, Katy Grainger, Kim Gilliam Steele & Mike St. Onge: Sepsis Survivors and Amputees
  • Sepsis and Older Adults, Al Cardillo, LMSW: President & CEO, Home Care Association of New York State
    & Wayne Shepard, RN: Director, Delaware County Office of the Aging
  • Advocacy Basics, Kristin DeVries: Director of Advocacy, Sepsis Alliance
  • Grief 101, Kristan Seaford, LPC
  • Sepsis awareness resources
  • Adaptive fitness and meditation classes
  • and more

FAQs

Do I need to be tech savvy?

Not necessary! Familiarity with a computer is helpful, but not required. Our staff is happy to help walk you through the process to get started, and the community is designed to be user-friendly. We also have regular drop-in “office hours” for tech questions.

What technology do I need?

Any up-to-date desktop/laptop computer or tablet will work. You also need a web camera & microphone (if not already built into your device) to participate in interactive programs.

Who is part of Sepsis Alliance Connect?

Sepsis Alliance Connect is made up of sepsis survivors, their caregivers and loved ones, and those who have lost loved ones due to sepsis. For many in the community, their experience with sepsis happened years ago. For others, it is a more recent experience. All are interested in connecting with others whose lives were impacted by sepsis.

Do I need to be able to hear the programming?

Wherever possible, live captioning is available for those who cannot hear programming well. In some cases, captioning may not be available for various program components such as videos.

Will programs be available in other languages?

Programming is currently available in English, but as Sepsis Alliance Connect grows, we hope to provide programming in other languages as well.

Will there be message boards or different ways to connect with others?

We expect Sepsis Alliance Connect to grow over time. While our current programs include live and recorded video sessions, we hope to expand into different ways of connecting (including written peer-to-peer communication) in the future.

Who can I ask if I have other questions?

Please reach out to Megan Jones with further questions, at mjones@sepsis.org

Join Sepsis Alliance Connect!

Please fill out the registration request. Sepsis Alliance will create your account and send login information by email.

Register Now
Sign in to Sepsis Alliance Connect!

Do you already have a Sepsis Alliance Connect login?
Click the button below to sign in.

Sign in