Being discharged from the hospital is a good day for most people, but it can also be stressful. Post-sepsis life can have challenges, especially if you have been left with long-term problems related to your illness. Some survivors recover completely and resume their lives, while others may struggle to cope, something no one expected.

Here you can find information to help you navigate post-sepsis life.

Sepsis Survivor Week, February 10-16, 2019

September is Sepsis Awareness Month, which helps promote awareness of sepsis, with the goal that increased awareness will result in early recognition and treatment. This in turn can save thousands of lives. Starting this year, Sepsis Alliance is adding to the awareness efforts by launching Sepsis Survivor Week, which will focus on the survivors and the challenges they may face. To be held each year during the second week of February, this year’s Sepsis Survivor Week will run from February 10th to 16th. Click here to learn more about Sepsis Survivor Week.

FAQ

Our Frequently Asked Questions (FAQ) section addresses many questions related to sepsis and life after sepsis. Survivors and their family and friends can find answers to questions, such as can I get sepsis again, why am I so tired, and can sepsis be prevented?

After discharge from the hospital

Once you have been discharged from the hospital, it may seem that you’ve been left to fend for yourself. Discharge instructions are sometimes rushed or may be incomplete, or you may not think of the questions you need to ask. To help you with the hospital to home or hospital to rehab transition, Sepsis Alliance has put together checklists with the most common issues that come up. Click here for the lists.

Learning about post-sepsis syndrome (PSS)

Many people who spend time in an intensive care unit (ICU) develop problems like post-traumatic stress disorder (PTSD). Those who were treated for sepsis may develop not only PTSD, but other problems as well. You can learn more about PSS here and PTSD here.

Coping with mental health issues

Your mental health is a vital part of your overall recovery. If you find yourself struggling with anxiety, depression, or any other mental health issue and you don’t know where to turn, visit our Mental Health Resources page for a list of organizations that may help you.

Explaining post-sepsis issues to others

If you are experiencing problems after your discharge, either physical, cognitive, or psychological, you may find it difficult to explain this to others, even other healthcare professionals. To help explain post-sepsis issues, Sepsis Alliance has written letters that explain sepsis and PSS to doctors, teachers, coaches, and daycare providers. Click here for the letters.

Conditions that can cause sepsis

Anyone can develop sepsis, but some people are at higher risk, including sepsis survivors. Learn how sepsis is associated with various conditions, such as diabetes, or situations, such as natural disasters, in our Sepsis and… library.

Know the sepsis facts

Many researchers are working to learn more about what causes sepsis, how it affects patients, and life after sepsis. Learn more about the facts and statistics in the Life After Sepsis fact sheet.

Help spread sepsis awareness

Many sepsis survivors and loved ones feel the need to help spread sepsis awareness so others don’t go through the same thing. There are many ways you can do this:

Faces of Sepsis

Share your story through our Faces of Sepsis feature. There are more than 1,000 stories from survivors and people who have lost a loved one to sepsis. Sharing your story has three initial benefits. Many survivors and loved ones feel that writing the story down and sharing it allows them to process feelings about their illness and the aftermath. It also helps others, the readers, learn that they aren’t alone.

Too many sepsis survivors think that no one understands what they’ve gone through but when they read these stories, they no longer feel so alone. These stories also show the readers that sepsis can affect anyone – their family, friend, coworker.

Host a talk

Sepsis Alliance has made available a kit called Sepsis 911, Community Education Presentation. A second one focusing on sepsis and aging will be available soon.

By giving talks to social groups, friends and family, school, even coworkers, you can help educate the people around you about sepsis, what it is, how it happens, and how to reduce your risk of developing it. The kit provides you with material you need for a successful talk, such as a leader’s guide (with script), a video, customizable promotional materials, surveys, and more.

Host an awareness event/fundraiser

Local awareness events are being held across the country, spearheaded by individuals like you. Whether you want to hold a Stomp Out Sepsis or Sips for Sepsis event, or anything in between, these events help raise awareness and raise funds for Sepsis Alliance, to help support the organization’s awareness efforts. Or if you’d rather do an online awareness event, that works too. Check out the Host An Event page for other ideas and a fundraising toolkit.

Find local events

If you are interested in participating in an awareness event but don’t feel you can organize one, check to see if there is one going on near you. Visit our Events page for a calendar of upcoming events.

Give to Sepsis Alliance

Sepsis Alliance is the nation’s leading organization, working in all 50 states to save lives and reduce suffering by raising awareness of sepsis as a medical emergency. As a non-profit organization, Sepsis Alliance depends on grants and donations from people like you. Every dollar counts, so no gift is too small. Many employers match donations to non-profit organizations, so you may want to check if your employer does. This can stretch your donation even more. Click here for our donation page.

Buy Sepsis Alliance products

You can find sepsis awareness products in our store. From symptoms cards to t-shirts, these products may introduce the word to someone who has never heard of it, stimulating a conversation about what sepsis is.

Are you looking for information that is not on this page? Please contact us at info@sepsis.org with your suggestions.